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The French Rare Disease Platform is managed by Maladies Rares Info Services and is funded by the AFM-Téléthon (the main funder) and the Ministry of Health and Access to Care.
The French Rare Disease Platform has a number of meeting rooms on its premises available free of charge, days a week, to rare disease stakeholders. To access the room reservation tool, you must be a stakeholder involved in rare diseases and/or an association that is a member of the Alliance maladies rares.
The Plateforme maladies rares is located at 96 rue Didot in Paris (14th arrondissement). It is not open to the public, only to those involved in events and meetings held there.
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